With a rare immunodeficiency disease, a performer and patient advocate learned lessons the hard way

Learning the hard way how to live with a rare inherited immunodeficiency, chronic granulomatous disease.

Oct 10, 2023 - 20:00
With a rare immunodeficiency disease, a performer and patient advocate learned lessons the hard way

When asked where he’s from, Casey Warford often waffles. He was born in San Antonio, but raised in Georgia, and then moved back to Texas for college. It’s a little complicated because all that time Warford was dealing with a complex medical condition. 

The oldest of three children and a couple of close cousins, Warford was a quiet, sleepy baby. But he couldn’t keep his food down, and he’d run fevers and suffer frequent infections. Around four months, he was diagnosed with chronic granulomatous disease, an inherited immune deficiency that made Warford highly vulnerable to fungal and bacterial infections. 

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