After loved ones’ long-awaited organ transplants, caregivers often find challenges are just beginning
Caregivers for people who receive organ transplants say there is often little support for the people helping loved ones through the long process of recovering and managing their health.
By the time his wife Glenda Daggert received a double organ transplant in 1999, Ira Copperman already had a lot of experience as a caregiver. The couple had been together for over two decades, married for one, and Copperman had become accustomed to helping Daggert manage her diabetes and its complications. Mixing insulin, going along for doctor’s visits, administering injections: it was all routine.
After the transplants, Daggert had a new kidney and a new pancreas, and was no longer diabetic. Yet this was not the ending to all her health issues, nor to Copperman’s role as a caregiver. “Transplantation is not the end story. You don’t stop what you do as caregiver or care partners the day after a transplant,” said Copperman, who serves as vice president of the nonprofit Transplant Recipients International Organization. “It is a lifelong journey.”
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