A scholar of the patient ‘revolution’ tracks the arc from powerlessness to influence
"The more we involve people who are living with the challenges, the faster progress we will make toward a treatment or an invention or an innovation that will address those…
At the end of each chapter in “Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care,” there’s a box. It summarizes the chapter, distilling what a reader just encountered into easy-to-digest bullet points. The author, Susannah Fox, admits she stole that idea from “The Long Covid Survival Guide,” which was written by patients for patients.
“One of the challenges with chronic illness and being exhausted is that you might have actually just forgotten what you just read,” Fox told STAT.
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